Information Law Institute

Workshop on Personal Health Portfolios: Technology, Usability, and Policy

NYU Information Law Institute & Department of Media, Culture, and Communication
Friday, February 8, 2013

Researchers at New York University will convene a roundtable workshop of experts to discuss technological, organizational and policy innovations in management of personal health information.The Office of the National Coordinator for Health Information Technology has defined the PHR as an “electronic record of health-related information on an individual that conforms to nationally recognized interoperability standards and that can be drawn from multiple sources while being managed, shared, and controlled by the individual” (2008:19). Introducing the term “portfolio,” we seek to broaden the initial conceptualization and explore parallels with similar initiatives in other social contexts. Questions discussed will include: What architectural, usability, and policy considerations guide optimal and appropriate information flows? What role does the portfolio play in cultivating user involvement and improving health outcomes? Can it accommodate health data from diverse sources, including mobile health applications? Can it assist in tracking and aggregating population-level health data? Who should provide, manage, and access, and under what circumstances? What principles ensure that privacy and security are designed into these systems from the outset? Is the vision of a system built around and managed by individual data subjects even useful, or sustainable in today’s burgeoning HIT ecology?

For more information visit the conference website.